Showing posts with label Life. Show all posts
Showing posts with label Life. Show all posts
Monday, March 11, 2013
With dignity...
So the last month has been a crazy one... I started trying to go out and enjoy my weekends (and life) but I havent been feeling well. I think I try to ignore the fact that my illness is now and always. I think I made myself run short of spoons for the month in a matter of days. Well, I've taken a step back and I have started to take my life one day at a time again... I took days off from work; I took a break from Zumba and even a break from blogging and FibroFighterz. But I'm back and I've decided to come back slowly. I know it's going to take a little while to get back on track but I've decided it's better to keep trying than to sit back and watch my life fade away... Facing this life one day at a time...
Friday, January 11, 2013
Slowly... but surely
So my days haven't exactly been easy lately. I am tired. I'm not sure where I'm going with anything.. not even this post. I just do what I can to get through my day sometimes a little less. My spoons are running on an all time low recently. I think its time to go back to the Dr but I'd decided about a month ago I was done with Drs and was giving myself a long break....so I'm gonna tough it out a little longer. Everyone of us needs those few weeks of no drs, no exams, no medication changes...
Well I haven't updated my results from the last appointment and I guess that's one of the major reasons I've had it with Drs. So here goes.... I have a bulging disc in my neck and cervical spine stenosis. Apparently my neck is much older than the rest of my body and my discs are obstructing the nerve canal and in turn the nerves that dictate my arms and upper body. As per my neurologist, at this point surgery is not needed (because there's not much they can do) this illness is apparently degenerative so I don't expect to get better. The only think he can do is control the inflammation and pain--obviously through medication. I've been taking some pain medication but I refuse to depend on it. Therapy is an option but its not a resolution so at this point I've decide to wait on it.
So for now, I'll just take one day at a time...
Well I haven't updated my results from the last appointment and I guess that's one of the major reasons I've had it with Drs. So here goes.... I have a bulging disc in my neck and cervical spine stenosis. Apparently my neck is much older than the rest of my body and my discs are obstructing the nerve canal and in turn the nerves that dictate my arms and upper body. As per my neurologist, at this point surgery is not needed (because there's not much they can do) this illness is apparently degenerative so I don't expect to get better. The only think he can do is control the inflammation and pain--obviously through medication. I've been taking some pain medication but I refuse to depend on it. Therapy is an option but its not a resolution so at this point I've decide to wait on it.
So for now, I'll just take one day at a time...
Wednesday, January 2, 2013
New Year affirmations NOT resolutions.
I don't believe in New Year resolutions but I do however believe in New Year Affirmations! New Year = New Attitude!
Use your thoughts to overcome this constant struggle and succeed with dignity. Talk is cheap. Thoughts require no cost. However, both have great power.
So TODAY (and everyday) think and speak:
Today, I WILL feel better.
Today, my body will NOT dominate my soul
Today, I have strength.
Although I have shed many tears, I KNOW I am strong!
Today, I will not allow my pain and fatigue to violate my spirit.
TODAY, I WILL ENJOY MY LIFE!!
Fibro ♥ Mireya
Thursday, October 25, 2012
I'm back!
So I've been MIA for a while but I'm back! I've been sick in bed since Sunday!! I have a sinus infection and throat infection :( It seems with this illness my colds knock me out. Since I've been diagnosed I hadnt done any vacationing. This weekend I took a 4 hour trip and I just realized how hard these trips are on me. I dont know how I've done it up until now. I wanted to die after only 2 hours. And after I got home I got sick and this infection just threw me in bed for days. I hope I can go back to work tomorrow. Its weird but I miss it. I hope that one day all of this will be a bad dream... Deep down I know its not but one can wish...
I feel so tired of feeling sick...
I feel so tired of feeling sick...
Tuesday, October 16, 2012
A Letter from Fibromyalgia
Dear Miserable Human Being,
Hi, my name is Fibromyalgia, and I’m an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can’t see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.
Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.) Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn’t ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, I’m here to stay! I hear you’re going to see a doctor who can get rid of me. I’m ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you’ll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You’ll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!
Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I’m a debilitating disease. Some of them will say things like “Oh, you’re just having a bad day”, or “Well, remember, you can’t expect to do the things you used to do 20 years ago,” not hearing that you said “20 DAYS ago”! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can’t remember what you were going to say next!
In closing, you’ve probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People with Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.
Remember, I’m stuck to you like Velcro – and I expect we’ll be together for the rest of your life.
Have a nice day!! (ROFL)
Fibromyalgia
(Thank you FibroFighterz for sharing....)
Hi, my name is Fibromyalgia, and I’m an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can’t see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.
Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.) Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn’t ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, I’m here to stay! I hear you’re going to see a doctor who can get rid of me. I’m ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you’ll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You’ll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!
Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I’m a debilitating disease. Some of them will say things like “Oh, you’re just having a bad day”, or “Well, remember, you can’t expect to do the things you used to do 20 years ago,” not hearing that you said “20 DAYS ago”! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can’t remember what you were going to say next!
In closing, you’ve probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People with Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.
Remember, I’m stuck to you like Velcro – and I expect we’ll be together for the rest of your life.
Have a nice day!! (ROFL)
Fibromyalgia
(Thank you FibroFighterz for sharing....)
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