Showing posts with label Fibro Fighterz. Show all posts
Showing posts with label Fibro Fighterz. Show all posts
Monday, March 11, 2013
With dignity...
So the last month has been a crazy one... I started trying to go out and enjoy my weekends (and life) but I havent been feeling well. I think I try to ignore the fact that my illness is now and always. I think I made myself run short of spoons for the month in a matter of days. Well, I've taken a step back and I have started to take my life one day at a time again... I took days off from work; I took a break from Zumba and even a break from blogging and FibroFighterz. But I'm back and I've decided to come back slowly. I know it's going to take a little while to get back on track but I've decided it's better to keep trying than to sit back and watch my life fade away... Facing this life one day at a time...
Friday, January 11, 2013
Slowly... but surely
So my days haven't exactly been easy lately. I am tired. I'm not sure where I'm going with anything.. not even this post. I just do what I can to get through my day sometimes a little less. My spoons are running on an all time low recently. I think its time to go back to the Dr but I'd decided about a month ago I was done with Drs and was giving myself a long break....so I'm gonna tough it out a little longer. Everyone of us needs those few weeks of no drs, no exams, no medication changes...
Well I haven't updated my results from the last appointment and I guess that's one of the major reasons I've had it with Drs. So here goes.... I have a bulging disc in my neck and cervical spine stenosis. Apparently my neck is much older than the rest of my body and my discs are obstructing the nerve canal and in turn the nerves that dictate my arms and upper body. As per my neurologist, at this point surgery is not needed (because there's not much they can do) this illness is apparently degenerative so I don't expect to get better. The only think he can do is control the inflammation and pain--obviously through medication. I've been taking some pain medication but I refuse to depend on it. Therapy is an option but its not a resolution so at this point I've decide to wait on it.
So for now, I'll just take one day at a time...
Well I haven't updated my results from the last appointment and I guess that's one of the major reasons I've had it with Drs. So here goes.... I have a bulging disc in my neck and cervical spine stenosis. Apparently my neck is much older than the rest of my body and my discs are obstructing the nerve canal and in turn the nerves that dictate my arms and upper body. As per my neurologist, at this point surgery is not needed (because there's not much they can do) this illness is apparently degenerative so I don't expect to get better. The only think he can do is control the inflammation and pain--obviously through medication. I've been taking some pain medication but I refuse to depend on it. Therapy is an option but its not a resolution so at this point I've decide to wait on it.
So for now, I'll just take one day at a time...
Wednesday, January 2, 2013
New Year affirmations NOT resolutions.
I don't believe in New Year resolutions but I do however believe in New Year Affirmations! New Year = New Attitude!
Use your thoughts to overcome this constant struggle and succeed with dignity. Talk is cheap. Thoughts require no cost. However, both have great power.
So TODAY (and everyday) think and speak:
Today, I WILL feel better.
Today, my body will NOT dominate my soul
Today, I have strength.
Although I have shed many tears, I KNOW I am strong!
Today, I will not allow my pain and fatigue to violate my spirit.
TODAY, I WILL ENJOY MY LIFE!!
Fibro ♥ Mireya
Tuesday, October 16, 2012
A Letter to Normals...
There are the things I would like you to understand before you judge me...
Please know that being sick doesn't mean I'm not human. I may spend most of my day flat on my back and I might not seem like great company, but I'm still me stuck inside this body. I worry about school, work, family and friends and I'd still like to hear about yours. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable but it will pass. I've been sick for for so long that I can't afford to be miserable all the time, in fact I work hard at not being miserable. So if I sound happy, it means that I'm happy, it does not mean that I am well. I may be in pain and sicker than ever.Please, don't say, "Oh, you're sounding better!".I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome. Please understand that being able to stand up for five minutes, doesn't mean that I can stand ten minutes, or an hour. It's likely that five minutes has exhausted my resources and I'll need to recover - imagine an athlete after a race. They couldn't repeat that feat right away either. With a lot of diseases you're either paralyzed or you can move, but with Fibromyalgia it gets more confusing. Please repeat the above paragraph substituting, "sitting up", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what a fatigue-based illness does to you. Please understand that chronic illnesses are variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, and the next I'll struggle to reach the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!". If you want me to do something, ask if I can and I'll tell you. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please don't take it personally. Please understand that "getting out and doing things" does not make me feel better, and can often make me worse. Fibromyalgia may cause secondary depression (wouldn't you get depressed if you were no longer able to participate in life?) but it is not caused by depression. Telling me that I need exercise is not appreciated or correct - if I could do it, I would. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm doing something. Fibromyalgia does not forgive. Please understand that I can't spend all of my energy trying to get well. With a short-term illness like the flu, you can afford to put life on hold for a week or two while you get well. But part of having a chronic illness is coming to the realization that you have to spend some energy on having a life now. This doesn't mean I'm not trying to get better. It doesn't mean I've given up. It's just how life is when you're dealing with a chronic illness.If you want to suggest a cure, please don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because every one of my friends has already suggested every theory known to man. I tried them all, but quickly realized I was using up so much energy trying new treatments I was making myself sicker, not better. If there was something that cured Fibromyalgia, all of us would know about it by now.If you read this and still want to suggest a cure, submit it in writing but don't expect me to rush out and try it. If it is something new, with merit, I'll discuss it with my doctor.Please understand that getting better can be a slow process. Fibromyalgia entails numerous symptoms and it can take a long time to sort them all out.
I depend on you - people who are not sick for many things but most importantly, I need you to understand me.
http://fmscommunity.org/lettertonormals.htm
Please know that being sick doesn't mean I'm not human. I may spend most of my day flat on my back and I might not seem like great company, but I'm still me stuck inside this body. I worry about school, work, family and friends and I'd still like to hear about yours. Please understand the difference between "happy" and "healthy". When you've got the flu you probably feel miserable but it will pass. I've been sick for for so long that I can't afford to be miserable all the time, in fact I work hard at not being miserable. So if I sound happy, it means that I'm happy, it does not mean that I am well. I may be in pain and sicker than ever.Please, don't say, "Oh, you're sounding better!".I am not sounding better, I am sounding happy. If you want to comment on that, you're welcome. Please understand that being able to stand up for five minutes, doesn't mean that I can stand ten minutes, or an hour. It's likely that five minutes has exhausted my resources and I'll need to recover - imagine an athlete after a race. They couldn't repeat that feat right away either. With a lot of diseases you're either paralyzed or you can move, but with Fibromyalgia it gets more confusing. Please repeat the above paragraph substituting, "sitting up", "walking", "thinking", "being sociable" and so on ... it applies to everything. That's what a fatigue-based illness does to you. Please understand that chronic illnesses are variable. It's quite possible (for me, it's common) that one day I am able to walk to the park and back, and the next I'll struggle to reach the kitchen. Please don't attack me when I'm ill by saying, "But you did it before!". If you want me to do something, ask if I can and I'll tell you. In a similar vein, I may need to cancel an invitation at the last minute, if this happens please don't take it personally. Please understand that "getting out and doing things" does not make me feel better, and can often make me worse. Fibromyalgia may cause secondary depression (wouldn't you get depressed if you were no longer able to participate in life?) but it is not caused by depression. Telling me that I need exercise is not appreciated or correct - if I could do it, I would. Please understand that if I say I have to sit down/lie down/take these pills now, that I do have to do it right now - it can't be put off or forgotten just because I'm doing something. Fibromyalgia does not forgive. Please understand that I can't spend all of my energy trying to get well. With a short-term illness like the flu, you can afford to put life on hold for a week or two while you get well. But part of having a chronic illness is coming to the realization that you have to spend some energy on having a life now. This doesn't mean I'm not trying to get better. It doesn't mean I've given up. It's just how life is when you're dealing with a chronic illness.If you want to suggest a cure, please don't. It's not because I don't appreciate the thought, and it's not because I don't want to get well. It's because every one of my friends has already suggested every theory known to man. I tried them all, but quickly realized I was using up so much energy trying new treatments I was making myself sicker, not better. If there was something that cured Fibromyalgia, all of us would know about it by now.If you read this and still want to suggest a cure, submit it in writing but don't expect me to rush out and try it. If it is something new, with merit, I'll discuss it with my doctor.Please understand that getting better can be a slow process. Fibromyalgia entails numerous symptoms and it can take a long time to sort them all out.
I depend on you - people who are not sick for many things but most importantly, I need you to understand me.
http://fmscommunity.org/lettertonormals.htm
A Letter from Fibromyalgia
Dear Miserable Human Being,
Hi, my name is Fibromyalgia, and I’m an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can’t see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.
Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.) Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn’t ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, I’m here to stay! I hear you’re going to see a doctor who can get rid of me. I’m ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you’ll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You’ll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!
Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I’m a debilitating disease. Some of them will say things like “Oh, you’re just having a bad day”, or “Well, remember, you can’t expect to do the things you used to do 20 years ago,” not hearing that you said “20 DAYS ago”! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can’t remember what you were going to say next!
In closing, you’ve probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People with Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.
Remember, I’m stuck to you like Velcro – and I expect we’ll be together for the rest of your life.
Have a nice day!! (ROFL)
Fibromyalgia
(Thank you FibroFighterz for sharing....)
Hi, my name is Fibromyalgia, and I’m an invisible chronic illness. I am now ‘velcroed’ to you for life. Others around you can’t see me or hear me, but YOUR body feels me. I can attack you anywhere and anyway I please. I can cause severe pain, or if I am in a good mood, I can just cause you to ache all over.
Remember when you and Energy ran around together and had fun? I took Energy from you and gave you Exhaustion. Just try to have fun now! I also took Good Sleep from you and in its place gave you Fibro Fog (a.k.a.) Brain Fog. I can make you tremble internally or make you feel cold or hot when everyone else feels normal. Oh yeah, I can make you feel anxious or depressed, too. If you have something planned, or are looking forward to a great day, I can take that away too. You didn’t ask for me. I chose you for various reasons: that virus you had that you never quite recovered from, or that car accident, or childbirth, the death of a loved one, or maybe it was those years of abuse and trauma. Well, anyway, I’m here to stay! I hear you’re going to see a doctor who can get rid of me. I’m ‘ROFL’ (rolling on the floor laughing)! Just try! You will have to go to many, many doctors until you find one who can help you effectively. In fact, you’ll see many doctors who tell you ‘it’s all in your head’ (or some version of that). If you do find a doctor willing to treat this ‘non-disease’, you will be put on pain pills, sleeping pills, and energy pills. You will be told you are suffering from anxiety or depression, given a TENS unit, told if you just sleep and exercise properly, I will go away. You’ll be told to think positively, poked, prodded, and most of all, you will not be taken seriously when you cry to the doctor how debilitating life is for you every single day!
Your family, friends, and coworkers will all listen to you until they just get tired of hearing about how I make you feel, and that I’m a debilitating disease. Some of them will say things like “Oh, you’re just having a bad day”, or “Well, remember, you can’t expect to do the things you used to do 20 years ago,” not hearing that you said “20 DAYS ago”! Some will just start talking behind your back, while you slowly feel that you are losing your dignity, trying to make them understand, especially when you are in the middle of a conversation with a ‘normal’ person, and can’t remember what you were going to say next!
In closing, you’ve probably figured out that the ONLY place you will get any real support and understanding in dealing with me is with Other People with Fibromyalgia! They are the only ones that will understand your complaints of unrelenting pain, insomnia, fibro fog, the inability to perform the everyday tasks that ‘normal people’ take for granted.
Remember, I’m stuck to you like Velcro – and I expect we’ll be together for the rest of your life.
Have a nice day!! (ROFL)
Fibromyalgia
(Thank you FibroFighterz for sharing....)
Monday, September 24, 2012
A fighterz motto...
It's my life, not Fibro's!
One of our fellow Fibromites on Fibro Fighterz, Colleen, said this and it makes so much sense. I think as suffers of a chronic illness we need to stop going around feeling sorry for ourselves. We need to make a conscious decision to become a fighter not a sufferer of the illness. We need to make this illness only a part of our lives and not the dictator of it. It's so much easier to say this than to live by it. Attitude is key to our entire lives!
I hope that these words impact all of you as much as it has me.... enough to make me one of many Fibro Fighterz!
Thursday, September 20, 2012
Fibro Fighterz
I'm having a good day!!! :) I'm so excited! I was accepted as an Admin to a Facebook page!! I know that to many it doesnt seem like much, but to me, its a HUGE step forward! It gives me a reason to be cheerful and to keep positive. I feel like I'm going to make a difference now! If I can be the cause for one smile a day, its MORE than enough to know that my day was worth struggling through... I hope that I can be of inspiration to this group...
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